Self Pity Is Not Attractive | Skinny Decaf Latte

Self Pity Is Not Attractive

By on January 10, 2015
Photo Via Yahoo

Photo Via Yahoo

I’ll spare the sob story, but growing up as “the sick kid” wasn’t exactly a June picnic. I spent the majority of my childhood wondering, “why me?” and feeling like an outcast next to my peers. I attended a Catholic school where weekly masses were standard and one thing I’ll never forget is how many of the other kids refused to shake my hand during the “peace be with you” portion of the ceremony. The doctors said my condition would most likely improve after adolescence, but it doesn’t take a genius to realize that adolescence is already an emotional roller coaster for most—even sans the skin condition.” – Kaleigh Fasanella

Hey Pretty,

I just finished reading Kaleigh’s touching story about growing up with a rare skin condition called Netherton Syndrome. This syndrome is estimated to affect 1 in 200,000 newborns and Kaleigh and her twin sister were both diagnosed with it as newborns. Kaleigh shares how her hair wouldn’t grow and skin always broke out and the pain that caused her all of young life. I can’t imagine what that must have been like to have an obvious skin rash on something as dominant as my face for most of my childhood. Kids can be cruel, well so can adults. I guess the world can be a cruel place, but it’s extra hard as a small child (in my opinion). 

But Kaleigh’s article was touching because she went on to share her journey through that pain and how she realized later in her childhood that things could be worse after she attended a camp for kids with skin issues. I’ve always hated that phrase, “things could be worse”. I think because I feel like it has been thrown in my face when I have shared incredibly vulnerable experiences with people I trusted. It wasn’t exactly the reaction I was hoping to get from them, though I’m not sure what I expected. But the harsh truth is, things always could be worse. And that’s what Kaleigh realized and eventually helped her to to find gratitude in life. 

Image Via Yahoo 

Image Via Yahoo 

This is Kaleigh now. She’s in college with hopes of moving to New York and becoming a beauty editor one day. She said that where she is today, if she had the chance to do it all over again without Netherton Syndrome, she wouldn’t. 

“I’ve realized that while this skin condition has shown me some truly trying times in my life, it’s also showed me pure beauty. How? Because beauty is bonding with my twin sister over an ailment only we can understand. Beauty is my mom looking me in the eyes when I’m sick and telling me she would trade places with me in a millisecond if she could. Beauty is my dad tearing up at my prom and telling me how gorgeous I look. Beauty is my friends and boyfriend doing whatever they could to build me up when I was at my worst. Because of them, I am able to look in the mirror even when I’m at my weakest and say, “you are beautiful and this will pass. Everyone has their own battle.” – Kaleigh Fasanella 

Where is the tissue? I love reading stories like this, don’t you? They serve as such a wonderful reminder (and reality check) that we all can find something to be grateful for. It also ties in with how I will define beauty in 2015 – gratitude. What or who are you grateful for?

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